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October 1: Ashley Wilder Smith: Person Centered Assessment Resource: An Innovative Health Measurement System
Historically, clinical research has suffered from the lack of comprehensive tools to measure patient centered outcomes that are brief, highly accurate, and valid for comparisons across the age spectrum and in both healthy populations and disease groups. To address these gaps, the NIH supported the development of four groundbreaking measurement systems: the Patient Reported Outcomes Measurement Information System® (PROMIS®), the NIH Toolbox for Assessment of Neurological and Behavioral Function (NIH Toolbox), the Quality of Life Outcomes in Neurological Disorders (Neuro-QOL), and the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). These systems measure a complement of important health outcomes either from the individual participant's or patient’s perspective (e.g., symptoms, function, health-related quality of life), or provide performance measures of function (e.g., sensory, motor, and cognitive health). In August 2014, the NCI awarded a trans-NIH Cooperative Agreement to integrate and support these four systems under one research resource. This presentation will describe the systems and their capabilities, and outline plans for their implementation in the research and clinical communities.
Session details...
BIO:
Ashley Wilder Smith, Ph.D., M.P.H. is a Behavioral Scientist and Program Director in the Outcomes Research Branch of the Applied Research Program. Her program of research focuses on developing, advancing and promoting investigations related to improving current understanding of patient reported outcomes and quality care for cancer patients, survivors and families.
SUMMARY:
Topic: Person Centered Assessment Resource: An Innovative Health Measurement System
Speaker: Ashley Wilder Smith, Ph.D., M.P.H.
Date: Wednesday, October 1, 2014
Time: 11 AM – 12 PM EDT
You are invited to listen to Dr. Smith's presentation in Room 2W908 in the NCI Shady Grove Building on Medical Center Drive or via WebEx.
Presentation: A screen cast of the presentation will be available for viewing after the event on the NCI CBIIT Speaker Series YouTube Playlist
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About the NCI CBIIT Speaker Series:
The National Cancer Institute (NCI) Center for Biomedical Informatics and Information Technology (CBIIT) Speaker Series is a bi-weekly knowledge-sharing forum featuring both internal and external speakers on topics of interest to the biomedical informatics and research communities. For additional information, including past speaker series presentations, visit the CBIIT Speaker Series page.
Individuals with disabilities who need reasonable accommodation to participate in this program should contact the Office of Space and Facilities Management (OSFM) at 240-276-5900 or the Federal TTY Relay number 1-800-877-8339.