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Tools for caDSR Metadata Development

The Curation Tool, CDE Browser and Administration Tool have online help to guide you. All the caDSR tools are explained on caDSR Database and Tools.

Metadata Development Training

Best practices training for caDSR metadata creation is available. The NCI Training Wiki identifies the course offerings and provides links for more information and to enroll.

caDSR Context Administrators Monthly Meeting

The Context Administrators meet the second Monday of every month to discuss topics related to caDSR Content, including documentation of business rules and best practices for development and recording of metadata, harmonization of caDSR content, and adoption of data standards. The minutes of these meeting are posted at caDSR Content Meeting Minutes.

Provide feedback

Feedback about caDSR content is welcome on the caDSR Users List.

caDSR Content

A goal of the Cancer Data Standards Registry and Repository (caDSR) program is to define a comprehensive set of standardized metadata descriptors for cancer research data for use in information collection and analysis.

Various NCI offices and partner organizations have developed the content of the caDSR by registration of data elements based on data standards, data collection forms, databases, clinical applications, data exchange formats, UML models, and vocabularies.

Based on the ISO/IEC 11179 model for metadata registration, information about names, definitions, permissible values, and semantic concepts for common data elements (CDEs) have been recorded. caDSR tools are available to create, locate, and use the metadata to support finding and understanding research data.

Contexts-Contact Information

The metadata information in the caDSR is developed by groups or organizations divided into domain-specific work areas called Contexts. A Context Administrator for each group provides oversight for creation, maintenance, and designation of CDEs within the Context. A list of contact information for Steward/Context Administrators, Stewardship Organization/Curators and Embedded Curators (doc) is available.

The current Contexts in the caDSR are listed below with the Context Administrator for each (updated 06/29/2021). Note - In the event the Steward/CA and/or SO/Curator leaves your organization, please contact the caDSR.RA@mail.nih.gov with new POC name and email if available.

Context Name

Link to Website

Context Administrator

Adult Brain Tumor ConsortiumABTCSung Tse (interim)
Yeshiva University Albert Einstein Cancer CenterAECC

Gwen Deen (interim)

AllianceAllianceCorina Moreno 
AIDS Malignancy ConsortiumAMC Damon Collie
Biorepositories and Biospecimen Research Branch BBRBPing Guan
Breast Oncology Local DiseaseBOLDJennifer Hayes

BRIDG Collaboration

BRIDG

Gwen Deen     

NCI Core Infrastructure

caCORE

Denise Warzel

NCI Center for Cancer Research

CCR

Elizabeth Ness

Cancer Clinical Trials GroupCCTGChad Winch
Centers for Disease Control and Prevention/Public Health Information NetworkCDC/PHINDenise Warzel

NCI Cancer Imaging Program

CIP

John Freymann

Cancer Immunotherapy Trials NetworkCITN

Gwen Deen (interim)

Children's Oncology GroupCOG

Mary Beth Sullivan

Thalia Beeles

NCI Clinical Trial Evaluation Program

CTEP

Andrea Denicoff

Duke Cancer InstituteDCIMichael Goodin

NCI Division of Cancer Prevention

DCP

Lisa Bengtson

Eastern Cooperative Oncology Group - Amercian College of Radiology Research NetworkECOG-ACRIN

ECOG - Jannett Garrido

ACRIN - Lindsey Dymond

NCI Early Detection Research Network

EDRN

Heather Kincaid

NCI Genomic Data Commons GDC Maureen Ryan (interim)
The Integrated Cancer Repository for Cancer ResearchiCaRe2Gwen Deen

Georgetown University Lombardi Cancer Center

LCC

Kanchi Krishnamurthy

NCI Molecular and Cellular CharacterizationMCLKristen Anton
NCI Data Standards NCI Data Standards caDSR Harmonization Team

National Cancer Informatics Program 

NCIP Brenda Duggan
Norton Healthcare - Norton Cancer InstituteNHC-NCI

Gwen Deen

National Heart, Lung, and Blood Institute

NHLBI

Kathleen Malum

National Institute of Child Health and Human DevelopmentNICHDWendy Zhang
National Institute on Drug AbuseNIDA Brian Campbell

National Institute of Dental and Craniofacial Research

NIDCR

Brian Campbell

NCI Network Rave Data Standards NRDS Ginger Riley
NRG Oncology Group (formerly GOG)

NRG

Vanita Patel

Office of Cancer Clinical Proteomics ResearchOCCPR 

Mathangi Thiagarajan - CPTAC

Chris Kinsinger - PDC 
NCI Office of Cancer Genomics OCG Subhashini Jagu
Oregon Health and Science UniversityOHSU-KnightSung Tse
NCI Office of National Coordinator SDC Project ONC SDC Project Brenda Duggan
PCORnet Common Data Model (CDMH Phase I)PCORTF CDMDenise Warzel
Pediatric Brain Tumor ConsortiumPBTCGwen Deen
Phenotypes and Exposures PhenX Helen Pan
Precision Medicine InitiativePMIGinger Riley

NCI Population Science and Cancer Control

PS&CC

Gwen Deen (interim)                  
The data elements in this context are a collaboration between the NCI Division of Cancer Control and Population Science ( DCCPS ) and NCI Division of Cancer Epidemiology and Genetics ( DCEG )

NCI Specialized Programs of Research Excellence

SPOREs

Angela Kumerow

SWOGSWOGDevin Hamid
TheradexTheradex

Diana Vulih

University of Southern California Norris Comprehensive Cancer CenterUSC/NorrisGwen Deen (interim)

Business Rules and Best Practices

The Context Administrators have agreed to business rules for development of caDSR content. The rules outline best practices for creation, assignment of metadata statuses, and maintenance of the various metadata components.

Harmonization of caDSR Content

The Context Administrators/Stewards work together to coordinate and harmonize metadata development efforts so common building blocks for data capture and reporting can be created. The goal is to ensure that shareable CDEs are not redundant across contexts and are based on the consensus of participating Contexts. To help minimize redundancy and duplication of CDEs across Contexts, the Context Administrators encourage reuse, or designation, of existing CDEs by other Contexts. Often an item is a candidate for reuse if minor edits can be made. If changes are needed to caDSR content, please contact the owning Context Curator.

NCI Data Standards

The NCI, together with its partners in the user community, is actively developing CDEs and standard vocabularies to be used as metadata descriptors for NCI-sponsored research and for caCORE-NCI applications. Workgroup and Content Meetings are regularly held to identify subject areas for standardization, develop CDEs and supporting documentation, and present proposed data standards to the user community for review. The data standards that have been adopted and those currently under review may be seen on the caBIG®-NCI Data Standards page.



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