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Across NIH, a number of Institutes and Centers have been active in developing or identifying common data elements (CDE) for funded investigators to use in supported research. The NIH Common Data Elements working group was established to improve the coordination and communication of these efforts across NIH and to provide a focal point for interactions with outside organizations. To date the working group has developed a Web portal to provide greater access to information about NIH CDE efforts, developed materials to promote the use of NIH CDEs, and established collaborations with outside organizations involved in data standards for clinical research. The This presentation will provide an update on these activities and outline future directions. |
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