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Page History
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- Unknown User (parchmentr)
- Pihl, Todd (NIH/NCI) [C]
- Otridge, John (NIH/NCI) [C]
- Sommers, Connie (NIH/NCI) [E]
- Unknown User (leblancak)
- Kim, Erika (NIH/NCI) [E]
Regrets:
Goals
- Discuss updates to ICDC and define emerging strategies and priorities
Discussion items
Item | Who | Notes |
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Introduction for Gina Kuffel | Pihl, Todd (NIH/NCI) [C] |
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SC Meeting |
Unknown User (parchmentr) | ||
ICDC Site |
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ICDC Next Phase |
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Other |
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Minutes (Not Verbatim)
TP- Next expected release is Sept. 13th. There is a new multi-study participant feature that illustrates canines that were enrolled in multiple studies, this feature is reliant on metadata, such as the biobank_id to discern this designation. Another feature in progress is the extension of the amount of data available for download through the user interface to be inclusive of all metadata that has been loaded into the data commons, at the moment this extended metatdata is only available through the API. Are there other priorities that we should be aware of? ICDC is aiming for quarterly releases.
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RP- We do have a mechanism in place that involves a Material Transfer Agreement (MTA), no ceiling on that. We can look into this, it comes out of the legal office, maybe we can set up a conference between the 4 of us
TH- PotentPotentially open this up ICDC up to other institutes, the concern is the amount of data that we currently have, we need to get more data ingested and assess the level of interest from other groups. I have a feeling that other institutes do not have this type of platform.
AL- The National Institute of Aging has an ongoing study on aging canines, there could be immunological data available.
TH- We would need to ensure to tag this type of data so that it is findable by disease type, so that researchers interested in cancer related data could find that data easily.
AL- Dog is a good translational model for cardiovascular disease, diabetes, kidney disease, and others.
JO- Also for narcolepsy.
AL- Additionally, genomic inherited diseases such as renal failure and muscular dystrophy.
AL- We are currently working on osteosarcoma whole genome data from clinical specimens and are looking to obtain canine specific bioinformatic support. We need to establish best practices for how canine data is analyzed
Action items
- Kuffel, Gina (NIH/NCI) [C] to set up meeting with Pihl, Todd (NIH/NCI) [C] Unknown User (parchmentr) and the legal office to discuss getting a MTA as a potential mechanism to motivate data submitters
- Kuffel, Gina (NIH/NCI) [C] to connect with CRDC Communications contact to discuss the possibility of launching a usability investigation to better understand user needs