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titleContents of this Page
Table of Contents
titleTools for caDSR Metadata Development

The Curation Tool, CDE Browser and Administration Tool have online help to guide you. All the caDSR tools are explained on caDSR Database and Tools.

Children Display
Data Standards
Children Display
titleMetadata Development Training

Best practices training for caDSR metadata creation is available. The NCI Training Wiki identifies the course offerings and provides links for more information and to enroll.

Meeting Biweekly Meeting Minutes on Gforge
  • CTEP Common Data Elements
  • Info
    titlecaDSR Context Administrators
    Monthly Meeting

    The Context Administrators meet the second Monday of every month to discuss topics related to caDSR Content, including documentation of business rules and best practices for development and recording of metadata, harmonization of caDSR content, and adoption of data standards. The minutes of these meeting are posted at caDSR Content Meeting Minutes.

    titleProvide feedback

    Feedback about caDSR content is welcome on the caDSR Users List.

    caDSR Content

    A goal of the Cancer Data Standards Registry and Repository (caDSR) program is to define a comprehensive set of standardized metadata descriptors for cancer research data for use in information collection and analysis.

    Various NCI offices and partner organizations have developed the content of the caDSR by registration of data elements based on data standards, data collection forms, databases, clinical applications, data exchange formats, UML models, and vocabularies.

    Based on the ISO/IEC 11179 model for metadata registration, information about names, definitions, permissible values, and semantic concepts for common data elements (CDEs) have been recorded. caDSR tools are available to create, locate, and use the metadata to support finding and understanding research data.

    Contexts-Contact Information

    The metadata information in the caDSR is developed by groups or organizations divided into domain-specific work areas called Contexts. A Context Administrator for each group provides oversight for creation, maintenance, and designation of CDEs within the Context. A list of contact information for Steward/Context Administrators, Stewardship Organization/Curators and Embedded Curators (doc) is available.

    The current Contexts in the caDSR are listed below


    with the Context Administrator for each (updated 06/29/2021). Note - In the event the Steward/CA and/or SO/Curator leaves your organization, please contact the with new POC name and email if available.

    Context Name

    Link to Website

    Context Administrator

    Adult Brain Tumor ConsortiumABTCSung Tse (interim)
    Yeshiva University Albert Einstein Cancer CenterAECC

    Gwen Deen (interim)

    AllianceAllianceCorina Moreno 
    AIDS Malignancy ConsortiumAMC Damon Collie
    Biorepositories and Biospecimen Research Branch BBRBPing Guan
    Breast Oncology Local DiseaseBOLDJennifer Hayes

    BRIDG Collaboration


    Gwen Deen     

    NCI Core Infrastructure


    Denise Warzel

    NCI Center for Cancer Research



    Elizabeth Ness

    Cancer Clinical Trials GroupCCTGChad Winch
    Centers for Disease Control and Prevention/Public Health Information NetworkCDC/PHINDenise Warzel

    NCI Cancer Imaging Program



    John Freymann

    Cancer Immunotherapy Trials NetworkCITN

    Gwen Deen (interim)

    Children's Oncology GroupCOG

    Mary Beth Sullivan

    Thalia Beeles

    NCI Clinical Trial Evaluation Program



    Andrea Denicoff

    Duke Cancer InstituteDCIMichael Goodin

    NCI Division of Cancer Prevention



    Lisa Bengtson

    Eastern Cooperative Oncology Group - Amercian College of Radiology Research NetworkECOG-ACRIN

    ECOG - Jannett Garrido

    ACRIN - Lindsey Dymond

    NCI Early Detection Research Network



    Heather Kincaid

    NCI Genomic Data Commons GDC Maureen Ryan (interim)
    The Integrated Cancer Repository for Cancer ResearchiCaRe2Gwen Deen

    Georgetown University Lombardi Cancer Center


    Kanchi Krishnamurthy

    NCI Molecular and Cellular CharacterizationMCLKristen Anton
    NCI Data Standards NCI Data Standards caDSR Harmonization Team

    National Cancer Informatics Program 

    NCIP Brenda Duggan
    Norton Healthcare - Norton Cancer InstituteNHC-NCI

    Gwen Deen

    National Heart, Lung, and Blood Institute



    Kathleen Malum

    National Institute of Child Health and Human DevelopmentNICHDWendy Zhang
    National Institute on Drug AbuseNIDA Brian Campbell

    National Institute of Dental and Craniofacial Research



    Brian Campbell

    NCI Network Rave Data Standards NRDS Ginger Riley
    NRG Oncology Group (formerly GOG)


    Vanita Patel

    Office of Cancer Clinical Proteomics ResearchOCCPR 

    Mathangi Thiagarajan - CPTAC

    Chris Kinsinger - PDC 
    NCI Office of Cancer Genomics OCG Subhashini Jagu
    Oregon Health and Science UniversityOHSU-KnightSung Tse
    NCI Office of National Coordinator SDC Project ONC SDC Project Brenda Duggan
    PCORnet Common Data Model (CDMH Phase I)PCORTF CDMDenise Warzel
    Pediatric Brain Tumor ConsortiumPBTCGwen Deen
    Phenotypes and Exposures PhenX Helen Pan
    Precision Medicine InitiativePMIGinger Riley

    NCI Population Science and Cancer Control


    Gwen Deen (interim)                  
    The data elements in this context are a collaboration between the NCI Division of Cancer Control and Population Science ( DCCPS )


    and NCI Division of Cancer Epidemiology and Genetics ( DCEG )


    NCI Specialized Programs of Research Excellence


    A Context Curator for each group provides oversight for the creation, maintenance, and designation of CDEs within the Context. A list of contact information for Context Administrators and Context Curators is available.




    Angela Kumerow

    SWOGSWOGDevin Hamid

    Diana Vulih

    University of Southern California Norris Comprehensive Cancer CenterUSC/NorrisGwen Deen (interim)

    Business Rules and Best Practices

    The Context Administrators have agreed to


    business rules for


    development of caDSR content. The rules outline best practices for creation, assignment of metadata statuses, and maintenance of the various metadata components.

    Harmonization of caDSR Content

    The Context Administrators/Stewards work together to coordinate and harmonize metadata development efforts so common building blocks for data capture and reporting can be created. The goal is to ensure that shareable CDEs are not redundant across contexts and are based


    on the consensus of participating Contexts. To help minimize


    redundancy and duplication of CDEs across Contexts, the Context Administrators encourage reuse, or designation, of existing CDEs by other Contexts. Often


    an item is a candidate for reuse if minor edits can be made. If changes are needed to caDSR content, please contact the owning Context Curator.


    NCI Data Standards

    The NCI, together with its partners in the


    user community, is actively developing CDEs and standard vocabularies to be used as metadata descriptors for NCI-sponsored research and for caCORE


    -NCI applications. Workgroup and Content Meetings are regularly held to identify subject areas for standardization, develop CDEs and supporting documentation, and present proposed data standards to the


    user community for review. The data standards that have been adopted and those currently under review may be seen on the


    Metadata Development Training
    Best practices training for caDSR metadata creation is available. The Training page provides a link to the training curriculum and instructions for enrollment in the classes offered.


    caBIG®-NCI Data Standards page.