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titleContents of this Page
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titleTools for caDSR Metadata Development

The Curation Tool, CDE Browser and Administration Tool have online help to guide you. All the caDSR tools are explained on caDSR Database and Tools.

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titleData Standards
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titleMetadata Development Training

Best practices training for caDSR metadata creation is available. The NCI Training Wiki identifies the course offerings and provides links for more information and to enroll.

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titlecaDSR Context Administrators Biweekly Monthly Meeting

The Context Administrators meet every two weeks to meet the second Monday of every month to discuss topics related to caDSR Content, including documentation of business rules and best practices for development and recording of metadata, harmonization of caDSR content, and adoption of data standards. The minutes of these meeting are posted on GForgeat caDSR Content Meeting Minutes.

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titleProvide feedback

Feedback about caDSR content is welcome on the caDSR Users List.

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The metadata information in the caDSR is developed by groups or organizations divided into domain-specific work areas called Contexts. A Context Curator Administrator for each group provides oversight for creation, maintenance, and designation of CDEs within the Context. A list of contact of contact information for Steward/Context Administrators, Stewardship Organization/Curators and Embedded Curators  is (doc) is available.

The current Contexts (updated 11/20/2013)  in in the caDSR are listed below with the Context Administrator for each (updated 06/29/2021). Note - In the event the Steward/CA and/or SO/Curator leaves your organization, please contact the caDSR.RA@mail.nih.gov with new POC name and email if available.

Context Name

Link to Website

Context Administrator

Adult Brain Tumor ConsortiumABTCSung Tse (interim)
Yeshiva University Albert Einstein Cancer CenterAECC

Gwen Deen (interim)

AllianceAlliance
Kathie Allen Ziegler
Corina Moreno 
AIDS Malignancy ConsortiumAMC Damon Collie
Biorepositories and Biospecimen Research Branch BBRBPing Guan
Breast Oncology Local Disease
 BOLD
BOLD
Dianne Reeves

NCI Cancer Biomedical Informatics Grid

caBIG®

Tommie Curtis
Jennifer Hayes

BRIDG Collaboration

BRIDG

Gwen Deen     

NCI Core Infrastructure

caCORE

Denise Warzel

NCI Center for Cancer Research

CCR

Dianne Reeves

Elizabeth Ness

Cancer Clinical Trials GroupCCTGChad Winch
Centers for Disease Control and Prevention/Public Health Information NetworkCDC/PHINDenise Warzel
Clincal Data Interchange Standards Consortium

CDISC

Rhonda Facile

NCI Cancer Imaging Program

CIP

John Freymann

Cancer Immunotherapy Trials NetworkCITN

Gwen Deen (interim)

Children's Oncology GroupCOG
Steven Jong

Mary Beth Sullivan

Thalia Beeles

NCI Clinical Trial Evaluation Program

CTEP

Andrea Denicoff

Duke Cancer InstituteDCIMichael
Leonard
Goodin

NCI Division of Cancer Prevention

DCP

Brenda Maeske

Lisa Bengtson

Eastern Cooperative Oncology Group - Amercian College of Radiology Research NetworkECOG-ACRIN
Tina Taylor

ECOG - Jannett Garrido

ACRIN - Lindsey Dymond

NCI Early Detection Research Network

EDRN

Heather Kincaid

NCI Genomic Data Commons GDC Maureen Ryan (interim)
The Integrated Cancer Repository for Cancer ResearchiCaRe2Gwen Deen

Georgetown University Lombardi Cancer Center

LCC

Gwen Deen (interim)

Northwest Community HealthcareNCH

Kanchi Krishnamurthy

NCI Molecular and Cellular CharacterizationMCLKristen Anton
NCI Data Standards NCI Data Standards caDSR Harmonization Team

National Cancer Informatics Program 

NCIP Brenda Duggan
Norton Healthcare - Norton Cancer InstituteNHC-NCI

Gwen Deen

National Heart, Lung, and Blood Institute

NHLBI

Robinette Renner

Kathleen Malum

National Institute of Child Health and Human DevelopmentNICHD
Steven Hirschfeld
Wendy Zhang
National Institute on Drug AbuseNIDA Brian Campbell

National Institute of Dental and Craniofacial Research

NIDCR

Brian Campbell

National Institute of Neurological Disorders and StrokeNINDSJoanne Odenkirchen
NCI Network Rave Data Standards NRDS Ginger Riley
NRG Oncology Group (formerly GOG)

NRG

Jessalyn Reboy

Vanita Patel

Office of Cancer Clinical Proteomics ResearchOCCPR 

Mathangi Thiagarajan - CPTAC

Chris Kinsinger - PDC 
NCI Office of Cancer Genomics OCG Subhashini Jagu
Oregon Health and Science UniversityOHSU-Knight
 Gwen Deen
Sung Tse
NCI Office of National Coordinator SDC Project ONC SDC Project Brenda Duggan
PCORnet Common Data Model (CDMH Phase I)PCORTF CDMDenise Warzel
Pediatric Brain Tumor ConsortiumPBTC
Lara Fournier
Gwen Deen
Phenotypes and Exposures PhenX Helen Pan
Precision Medicine InitiativePMIGinger Riley

NCI Population Science and Cancer Control

PS&CC

Mary Cooper

Gwen Deen (interim)                  
The data elements in this context are a collaboration between the NCI Division of Cancer Control and Population Science ( DCCPS ) and NCI Division of Cancer Epidemiology and Genetics ( DCEG )

NCI Specialized Programs of Research Excellence

SPOREs

Dianne Reeves

Angela Kumerow

SWOGSWOG
Angela Smith
Devin Hamid
TheradexTheradex

Diana Vulih

University of Southern California Norris Comprehensive Cancer CenterUSC/NorrisGwen Deen (interim)

Business Rules and Best Practices

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The Context Administrators/Stewards work together to coordinate and harmonize metadata development efforts so common building blocks for data capture and reporting can be created. The goal is to ensure that shareable CDEs are not redundant across contexts and are based on the consensus of participating Contexts. To help minimize redundancy and duplication of CDEs across Contexts, the Context Administrators encourage reuse, or designation, of existing CDEs by other Contexts. Often an item is a candidate for reuse if minor edits can be made. If changes are needed to caDSR content, please contact the owning Context Curator.

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The NCI, together with its partners in the user community, is actively developing CDEs and standard vocabularies to be used as metadata descriptors for NCI-sponsored research and for caCORE-NCI applications. Workgroup and Content Meetings are regularly held to identify subject areas for standardization, develop CDEs and supporting documentation, and present proposed data standards to the user community for review. The data standards that have been adopted and those currently under review may be seen on the caBIG®-NCI Data Standards page.

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