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caDSR Wiki | caDSR Database and Tools | caDSR Documentation
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The NCI caDSR CDE Browser can be used to download collections of metadata describing data held in repositories for cancer research and clinical trials. There are currently no NCI Recommended CDEs for use other than the  CDEs marked as having a Registration Status of "Standard".  Any CDE in caDSR can be reused, but the ones marked "Standard" have been through a broader governance process. There communities within NCI who have agreed to use a set of CDEs for specific purposes, for example EDRN, TCGA, NCTN, and many others.  If you wish to collect data that is compatible with a specific group, you should begin by looking for the group's CDEs using the CDE Browser.  The Context name is an organizing principle for tree based navigation, and the "Advanced Search" provides a way to search for CDEs grouped by Classifications, or keywords.

Best Practices for creating CDEs  can be found here.

The caDSR Form Builder can be used to create, view and download the Case Report Forms (CRFs) designs.

Currently, CDEs can be downloaded in Excel or XML Format, CRFs can be downloaded in Excel format.

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CommonProjects:Included Help Downloading Files Panel
CommonProjects:Included Help Downloading Files Panel

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caDSR Production CDEs in XML caDSR logo CDE Browser

 Form Builder Logo


   CDEs as Excel CDEs as XML CRF as Excel

          CDEs as Excel             CDEs as XML             CRF as Excel

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TCGA Phase II meta data elements (CDEs)

TCGA (The Cancer Genome Atlas) is a project funded by the National Cancer Institute (NCI) and National Human Genome Research Institute (NHGRI). A project overview can be found on the TCGA Home Page.

TCGA provides data element descriptions for the clinical data elements found in the TCGA data files.  The BCR on-line data dictionary displaying the essentials of the clinical CDEs as an HTML page is located here.  The files below contain all the caDSR metadata for these CDEs.  The HTML data dictionary was generated from the XML download of the TCGA CDEs. For more information or help creating your own HTML Data Dictionary from NCI registered CDEs, please contact the NCI Help Desk.

They are also available from the CDE Browser in the caBIG Context under the Classifications tab heading " TCGA 2.6 by Disease ".  New TCGA CDEs not yet in the BCR data dictionary can be found under the caBIG Classification "The Cancer Genome Atlas", sub-heading "New TCGA Data Elements"

Biomedical Research Integrated Domain Group (BRIDG) meta data elements (CDEs)

BRIDG is a model that was created by a collaborative effort engaging stakeholders from the Clinical Data Interchange Standards Consortium (CDISC), the HL7 BRIDG Work Group, the US National Cancer Institute (NCI), and the US Food and Drug Administration (FDA). A logical information model was developed to describe basic, pre-clinical, clinical, and translational research.  Please visit the BRIDG website for more information.

The CDEs in the BRIDG model are available from the CDE Browser in the BRIDG Context under the Classifications heading "Link to BRIDG 3.2", subheading "BRIDG 3.2". They have been downloaded and made available here for convenience.

 BRIDG 3.0.2 is also available in the Attachments section of this page and in the CDE Browser.

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North American Central Cancer Registries (NAACCR) meta data elements (CDEs)

NAACCR develops and promotes uniform data standards for cancer registration, and aggregates and publishes data from central cancer registries. It promotes the use of cancer surveillance data and systems for cancer control and epidemiological research. See their website for more information about NAACCR.

NCI has registered several versions of the NAACCR data elements as CDE metadata in caDSR for discovery and use by those wishing to utilize the NAACCR data, or create data repositories of compatible data.

The following versions of NAACCR have been recorded in caDSR, are available from the CDE Browser in the PS&CC Context under the Classifications tab heading "Division of Cancer Control and Population Sciences ". They have been downloaded and made available here for convenience.

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National Biomedical Imaging Archive (NBIA)(formerly NCIA)

The CDEs in the HINTS 2005 survey are available from the CDE Browser in the caBIG Context under the Classifications heading "NBIA". They have been downloaded and made available here for convenience.

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Surveillance, Epidemiology and End Results (SEER) meta data elements (CDEs)

The SEER program works to provide information on cancer statistics in an effort to reduce the burden of cancer among the U.S. population.  The data elements collected in cancer surveillance have been registered in the NCI caDSR, and are available from the CDE Browser in the PS&CC Context under the Classifications tab heading "caSEER", subheading " com.imsweb.caseer ". They have been downloaded and made available here for convenience.

Health Information National Trends Survey (HINTS2005)

The CDEs in the HINTS 2005 survey are available from the CDE Browser in the PS&CC Context under the Classifications heading "HINTS2005". They have been downloaded and made available here for convenience.

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Electronic Medical Records and Genomics (eMerge) Network CDEs       

The CDEs in the eMerge project are available from the CDE Browser in the caBIG Context under the Classifications heading "eMerge Data Variables". They have been downloaded and made available here for convenience.

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