Attempting to download all the caDSR CDEs would result in a file size that is too large for an a single MS Excel download. The canned collections in the following list are provided for your convenience.Here are some XSLT files that transform , and currently forms can only be downloaded one form at a time.
Therefore, "canned", or pre-downloaded collections of all the NCI "Released" CDEs, and CDEs by selected individual projects in is provided for your convenience. The NCI Preferred Standards have become too large to download in a single file, so they can be extracted from the "Released" CDE files.
Note that NCI added an FTP site where all "Released" CDEs as XML.
REDCap CDE and CRF Transformation Utilities - REDx
- CDE XML Download to REDCap CSV as of 6/26/2012
- Form Cart XML to REDCap CSV
- Adverse Event NCI CRF Standards created on June 29th, 2012
- Adverse Event NCI CRF Standards in Excel
- Demography NCI CRF Standards created on June 29th, 2012
- All non-retired production CDEs (CDEs that do not have Workflow status = "RETIRED....") as of June 25, 2012
- All production CDEs with Registration Status = "STANDARD" as of Jan 27, 2012
- TCGA Phase II Data Elements - as of Oct. 19, 2011
- North American Central Cancer Registries (NAACCR) meta data elements (CDEs)
- Surveillance, Epidemiology and End Results (SEER) meta data elements (CDEs) - as of Dec 23, 2010
- BRIDG metadata elements (CDEs) - as of Feb 03, 2011
- National Biomedical Imaging Archive (NBIA)(formerly NCIA)- as of Feb 09, 2011
- Health Information National Trends Survey (HINTS2005)- as of April 04, 2012
- eMerge Project - as of April 09, 2012
For other formats and prior versions of the files see the attachments listed at the end of this page.
Current NCI Standard CRFs
The NCI develops and publishes standard CRF templates for use in creating new clinical trials protocol forms. Each CRFs consists of CDEs organized into 3 sections: mandatory, optional, and conditional CDEs. To retrieve these and any other forms registered in caDSR since the dates listed below, please visit the caDSR Form Builder, where a Guest account and password are provided for your convenience.
There are currently over 70 Standard CRFs released for production use.
There are 60 CRFs that have been converted to REDCap format and can be found in the Shared Library, and in the zip file attached here.
NCI Standard CRFs: REDCap format Zip
CDEs initiatives are owned by individual NCI Divisions, Offices, and Centers, as well as by NCI stakeholder communities who have chosen to use NCI caDSR as a central repository for their CDEs. The CDEs are organized in the caDSR CDE Browser based on Context and Classification Scheme. Contexts represent a community who have agreed to share CDEs and CRFs, within a Context end users create Classification Schemes within caDSR for various projects in their community, and use them to classify and organize CDEs. The classifications are a list of keywords and categories familiar to the community. Opening up a Context in the CDE Browser will reveal a "Classifications" node, that when opened will list all the projects in alphabetical order. Clicking on a project node will return a list of all the CDEs for that project.
For prior downloaded versions of these collections, see the Attachments listed at the end of this page. The date of the download is listed as the "as-of" date for each collection of CDEs.
If importing caDSR content from a download into another ISO/IEC 11179 or other similar CDE or CRF metadata registry, please add the caDSR Registration Authority Identifier (RAI) 2.16.840.1.1138184.108.40.206 to the metadata to keep the caDSR content distinct from the local repository. Per ISO/IEC 11179, the RAI is part of a globally unique identifier known as the IRID (Item Registry Identifier), and uniquely identifies registry content as being related to particular registrars. The IRID for all caDSR content is the <caDSR OID + Item public Id + item version>. For example, if the caDSR item public id = 2181292, version = 1.1, when importing you would add the RAI, and the result would be an IRID = 2.16.840.1.1138220.127.116.11 + 2181292 + 1.1.
Coming soon! A link to cancerGrid UK cgMDR PTCRi (Particle Therapy Cancer Research) instance of cgMDR where you can download metadata elements in caDSR XML format, the native cgMDR format for importing into your own cgMDR instance, as well as an XML Schema annotated with W3C SAWSDL annotation tags.
The following lists the attachments to this page.