...

Roles and Responsibilities:

Data Governance Board.

Comprised Composed of 3 NCI staff (one from CBIIT and two from DCTD), 2 external members (from ICDC Steering Committee) and supported by FNL staff. The DGB will be chaired by an NCI member. The DGB will meet at least quarterly to review and adjudicate on all open and complete requests. They will use documented evaluation criteria to determine if a request is approved or declined. The DGB will also determine the evaluation criteria and may adjust those criteria. The DGB is also responsible for developing and maintaining any data life cycle considerations.  The DGB Chair will be responsible for ensuring each meeting has an agenda, defining if a quorum is present, confirming evaluation criteria are current, and ensuring discussions are unbiased. The DGB Chair will also report to the ICDC Steering Committee the summary status of all data requests. Since the ICDC is a node in the Cancer Research Data Commons (CRDC) data requests may involve considering other CRDC components (for example, the CRDC-H data model or the Cancer Data Aggregator). The CBIIT representative will be responsible for representing CRDC considerations in discussing requests and in development and maintenance of any relevant evaluation criteria. DGB meetings will not require in-person attendance.   

...

FNL will manage the request process, ensure the evaluation criteria are made public and are current, ensure there is a tracking system, and monitor status for all requests. They will provide the DGB reports on complete and open requests on a quarterly basis. They will document the decisions made by the DGB and will communicate those decisions to the relevant stakeholders. They will also contribute to the generation of the evaluation criteria, contribute to development of data lifecycle policy, track any data lifecycle parameters assigned to a set of data, and provide summary data on requests and data life cycle status. The FNL staff will provide logisitics support for the DGB review sessions, including setting up meetings and ensuring all decisions are documented.