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EVS supports a broad community of users, growing from its core mission of meeting NCI terminology needs to also support community-driven standards |
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for data exchange and interoperability |
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in clinical trial, research and other activities. Over the last dozen years, this community has |
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contributed to EVS content, technology, and dissemination, achieving results beyond what the individual participants could have achieved separately. The primary EVS website is an informational site with links to the other EVS tools and browsers and to multiple downloadable files. This document briefly outlines EVS resources; collects available statistics, for |
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NCI and related systems, to capture the level, composition, and nature of use |
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; and then |
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provides more operational details, user |
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profiles and other information, including top users of specific resources. Each section focuses on a particular topic, with selected highlights gathered here. User Profiles |
Direct Use of EVS Servers
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Shared Terminology Development
Use of EVS Servers
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Use of EVS Content on Select Non-EVS Servers |
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Shared Terminology Development
- Over the last 10 years, NCIt has been adopted by FDA, CDISC, NCPDP and other partners as a shared framework for developing terminology standards, allowing participants to compare and harmonize with each other's content while taking advantage of full-text definitions, codes, and other features.
- About 40,000 out of the nearly 100,000 current NCIt concepts have terms from both EVS and from one or more of these other sources.
User Profiles
- EVS terminology content, standards and technology are adopted and actively used by many user organizations and communities, some directly involving tens of thousands of users.
- Examples include:
- Clinical trial programs such as CCOP, using NCIt for coding the care of 85,000 patients
- TCGA content, used by at least 59 academic, commercial and non-profit organizations in 25 studies
- caNanoLab, still heavily used with more than 141,668 visitors since June of last year
- NIH use such as at NICHD, which employs NCIt pediatric terminology for the coding of 848 clinical trials, used by 52 different academic and research organizations
- Many of these standards extend beyond the NCI and NIH community to outside agencies and standards organizations such as NCPDP, whose use of NCI's drug standard terminology extends its use to some 200 vendors serving approximately 15,000 pharmacies nationwide, including large providers such as First DataBank and Surescripts, the nation's largest e-prescriber.
- Surescripts alone connects thousands of pharmacies across the US, and is connected to the largest network of payers and Medicaid Fee for Service payers nationwide.
- NCIt content has also become a regulatory standard through shared use by FDA, CDISC and others, such as for drug submissions.
- FDA states that from Oct. 2009 until September 2010, some 14, 014 electronic submissions were received at FDA in electronic format using NCI Thesaurus regulatory coding.
- Numerous academic, research, and even commercial organizations are also using and extending the capabilities of LexEVS and other EVS tools, for use throughout their organizations and for the development of commercial products.
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Use of EVS Tools
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