A goal of the Cancer Data Standards Registry and Repository (caDSR) program is to define a comprehensive set of standardized metadata descriptors for cancer research data for use in information collection and analysis.
Various NCI offices and partner organizations have developed the content of the caDSR by registration of data elements based on data standards, data collection forms, databases, clinical applications, data exchange formats, UML models, and vocabularies.
Based on the ISO/IEC 11179 model for metadata registration, information about names, definitions, permissible values, and semantic concepts for common data elements (CDEs) have been recorded. caDSR tools are available to create, locate, and use the metadata to support finding and understanding research data.
The metadata information in the caDSR is developed by groups or organizations divided into domain-specific work areas called Contexts. A Context Curator for each group provides oversight for creation, maintenance, and designation of CDEs within the Context. A list of contact information for Context Administrators and Context CuratorscaDSR Context Administratosr and Curators 3272013.doc is available.
The current Contexts (updated 03/27/2013) in the caDSR are listed below with the Context Administrator for each.
|Amercian College of Radiology Research Network||ACRIN||Tina Taylor|
|Yeshiva University Albert Einstein Cancer Center||AECC||Gwen Deen (interim)|
NCI Cancer Biomedical Informatics Grid
NCI Core Infrastructure
NCI Center for Cancer Research
|Centers for Disease Control and Prevention/Public Health Information Network||CDC/PHIN||Denise Warzel|
Clincal Data Interchange Standards Consortium
NCI Cancer Imaging Program
|Children's Oncology Group||COG||Steven Jong|
NCI Clinical Trial Evaluation Program
NCI Division of Cancer Prevention
NCI Early Detection Research Network
Georgetown University Lombardi Cancer Center
National Heart, Lung, and Blood Institute
|National Institute of Child Health and Human Development||NICHD||Steven Hirschfeld|
|National Institute on Drug Abuse||NIDA||Brian Campbell|
National Institute of Dental and Craniofacial Research
|National Institute of Neurological Disorders and Stroke||NINDS||Joanne Odenkirchen|
NCI Population Science and Cancer Control
NCI Specialized Programs of Research Excellence
|University of Southern California Norris Comprehensive Cancer Center||USC/Norris||Gwen Deen (interim)|
The Context Administrators have agreed to business rules for development of caDSR content. The rules outline best practices for creation, assignment of metadata statuses, and maintenance of the various metadata components.
The Context Administrators work together to coordinate and harmonize metadata development efforts so common building blocks for data capture and reporting can be created. The goal is to ensure that shareable CDEs are not redundant across contexts and are based on the consensus of participating Contexts. To help minimize redundancy and duplication of CDEs across Contexts, the Context Administrators encourage reuse, or designation, of existing CDEs by other Contexts. Often an item is a candidate for reuse if minor edits can be made. If changes are needed to caDSR content, please contact the owning Context Curator.
The NCI, together with its partners in the Cancer Biomedical Informatics Grid (caBIG®) community, is actively developing CDEs and standard vocabularies to be used as metadata descriptors for NCI-sponsored research and for caCORE-caBIG® applications. The Context Administrators, meeting biweekly, identify subject areas for standardization, develop CDEs and supporting documentation, and present proposed data standards to the caBIG® Vocabulary and Common Data Element Workgroup (VCDE) for review. The caBIG® Data Standards Development and Governance Model helps guide data standard development for the caBIG®-NCI community. The data standards that have been adopted and those currently under review may be seen on the caBIG®-NCI Data Standards page.