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Goals of the workshop

  • Convene the NIH community interested in Common Data Elements (CDEs) to support NIH-wide understanding of current CDE activities and opportunities.

  • Identify current barriers/challenges for the adoption and use of CDEs by NIH-funded researchers, both intramural and extramural.

  • Identify possible ways to modify development, implementation, and use of CDEs to increase adoption and value to research.

  • Identify incentives and opportunities for involvement of relevant communities in CDE development, harmonization, use, and re-use.

  • Develop evaluation plans for CDEs to test their assumed utility.

Check back, or click "watch" this page for more information about the workshop.


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Workshop Organizers:

NIH OD: Unknown User (bournepe)     Jennie Larkin        Leslie Derr

NLM: Betsy Humphreys   Jerry Sheehan     Michael Huerta     Lisa Lang

NCI CBIIT: Unknown User (kibbewa2)    Unknown User (decorons)    Unknown User (reevesd)      Denise Warzel

NCATS:  Elaine Collier

 

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Pre-workshop Webinar:

NIH Common Data Element (CDE) Initiatives  - conducted Tuesday September 8, 2015, 12-1:30  

  • Introduction by the ADDS - Phil Bourne
  • Overview of BMIC CDE efforts - Mike Huerta
  • Notes from the field – voices across NIH involved in CDEs and data standards.  Multiple uses of CDEs.
  • PROMIS CDEs - Ashley Wilder Smith
  • NIH PhenX Overview - Erin Ramos, followed by NHLBI Sickle Cell Disease CDEs Ellen Werner
  • NCI CDE overview - Dianne Reeves
  • NINDS CDEs  - Joanne Odenkirchen, followed by Federal Interagency Traumatic Brain Injury Research (FITBIR) BRICS informatics system - Matt McAuliffe

 

 


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Pre-Workshop Materials

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