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photo of Patricia BrennanSYNOPSIS:

For most people health occurs in every-day living, not in hospitals and doctor's offices.  They must remember to take medications, monitor healing progress, note changes from normal, or get up and exercise — all information intensive and cognitively demanding activities.  Through Project HealthDesign, an eight-year initiative funded by the Robert Wood Johnson Foundation, we learned that there is so much more to health information than what is generated in the course of care and recorded in the electronic health record.  In addition to lab values and blood pressures, people attend to a wide range of data that informs them about their health status and drives them toward healthy behaviors.  We call these novel data types "observations of daily living" (ODLs).  ODLs represent the sensations, behaviors, attitudes, thoughts, and exposures to which people attend and draw interpretations about their health situation.

Patient-generated data includes ODLs, as well as a full range of parameters that only the individual person can provide. Programs like PCORI and the NQF Patient-reported outcomes measures project show that patient-generated data not only is useful for augmenting clinical signs and assessments in evaluating a patient's health needs, but also can be used to determine the effectiveness of care. There is growing acceptance of the importance and relevance of patient-reported data and an uptake in the sophistication of the tools used to create, store, report, and analyze it.  In this presentation, Dr. Brennan will introduce the concept of patient-generated data, provide an elaboration of one novel type (ODLs), and explore the ethical and policy issues related to capture and use of patient-reported data.

Session details...

Patricia Flatley Brennan, R.N., Ph.D., is the Lillian L. Moehlman Bascom Professor, School of Nursing and College of Engineering, University of Wisconsin, Madison, Wisconsin. Dr. Brennan received a Master of Science in Nursing from the University of Pennsylvania and a Ph.D. in Industrial Engineering from the University of Wisconsin, Madison.  Following seven years of clinical practice in critical care nursing and psychiatric nursing, Dr. Brennan held several academic positions.  Dr. Brennan is National Program Director of Project HealthDesign, a Robert Wood Johnson Foundation-funded initiative designed to stimulate the next generation of personal health records.

SUMMARY:

Topic: Patient-Generated Data: Opening a Window Into the Everyday Lives of People

Speaker: Patricia Brennan, R.N.,Ph.D.

Date: Wednesday, March 5, 2014

Time: 11 AM – 12 PM EST

You are invited to listen to Dr. Brennan's presentation in Room 2W908 in the NCI Shady Grove Building on Medical Center Drive or via WebEx.

Presentation: A screen cast of the presentation will be available for viewing after the event here on our Speaker Series Videos page and on the NCI CBIIT Speaker Series YouTube Playlist Exit Disclaimer logo .

About the NCI CBIIT Speaker Series:

The National Cancer Institute (NCI) Center for Biomedical Informatics and Information Technology (CBIIT) Speaker Series is a bi-weekly knowledge-sharing forum featuring both internal and external speakers on topics of interest to the biomedical informatics and research communities. For additional information, including past speaker series presentations, visit the CBIIT Speaker Series page.

Questions? Please email us at NCICBIITcomms@mail.nih.gov.

Individuals with disabilities who need reasonable accommodation to participate in this program should contact the Office of Space and Facilities Management (OSFM) at 240-276-5900 or the Federal TTY Relay number 1-800-877-8339.

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